News

RESULTS AVAILABLE: APEx-D: Autism Parent Experiences of Dentistry

Communication is key to family-centred care

Cerebra Research Support Network opportunity

A new family involvement initiative from Cerebra

New Parent Voices videos

Two Family Faculty members have told us why they are involved in the PenCRU Family Faculty, and give examples of how they have worked with us.

Hospital Communications publication Plain Language Summary

A plain language summary of our paper published in the BMJ Paediatric Open is available. 

Hospital Communications project publication

Improving communication between staff and disabled children in hospital wards

Parents suggest which indicators of progress and outcomes should be measured in young children with Autism Spectrum Disorder (ASD)

A new publication from the MeASURe study on selecting outcomes for young children with autism.

New publication - GRIPP2 reporting checklists

Tools to improve reporting of public involvement in research

Summer 2017 newsletter published

Our latest newsletter is now online

PenCRU and Family Faculty at the 2017 European Academy of Childhood Disability (EACD) conference

In May 2017, Chris Morris, Stuart Logan and four Family Faculty members travelled to Amsterdam to present at the European Academy of Childhood Disability (EACD) conference.

New evidence summary: FES to improve gait in children with cerebral palsy

Is there evidence that Functional Electrical Stimulation (FES) is effective for improving gait (walking pattern) of children with cerebral palsy?

New evidence summary: Improving social skills of young adults with autism

What's the evidence for improving social skills of young adults with autism? 

Welcome to our Family Involvement Coordinator

While Katharine Fitzpatrick, our Family Involvement Coordinator, is on maternity leave, her role will be covered by Silvia Bortoli.

PenCRU at British Academy of Childhood Disability annual scientific meeting

Chris and colleagues participated in the British Academy of Childhood Disability annual scientific meeting last week in Manchester.

New evidence summary: Snowdrop for Brain Injured Children

We have completed a new 'What's the evidence?' summary that you can now access

New paper published

We are pleased to announce a new academic publication looking at using active console games therapeutically.

New members of the PenCRU research team

We are pleased to welcome two new members of staff.

PenCRU Annual Report 2016

We are pleased to announce publication of the PenCRU Annual Report 2016

New evidence summary: Psychotherapy and the Frankish model

What's the evidence for psychotherapy and the Frankish model for children and young people with learning disabilities? 

New evidence summary update: Selective Dorsal Rhizotomy

What's the evidence for Selective Dorsal Rhizotomy for children with cerebral palsy? 

New evidence summary: brain surgery to reduce seizures in Sturge-Weber Syndrome

What types of brain surgery are most effective to reduce seizures in children with Sturge-Weber Syndrome? 

New publication

Interventions utilising contact to improve children's attitudes towards disability.

Award winning staff

Recognising PenCRU public engagement

1000+ Twitter Followers!

Connecting with the #disabilityresearch community

PenCRU blogs for Cochrane UK

Evidence-based practice for allied health professionals

New PenCRU publication

Resources for parents raising a disabled child in the UK

Adding value in research

National Institute of Health Research (NIHR) features study led by PenCRU

Recognition for Cerebra Professor Stuart Logan

National Institute of Health Research (NIHR) recognises PenCRU's Stuart Logan

New researcher joins PenCRU

Find out more about the newest member of our team

NEW STUDY – Cerebral Visual Impairment (CVI)

Improving outcomes for children with cerebral visual impairment

New Evidence Summary - Invasive Medical Procedures

What helps to reduce distress and improve cooperation with invasive medical procedures for children with neurodisability?

‌Understanding children's attitudes towards disability

Can we improve how we measure children’s attitudes about disability?

#Whywedoresearch

Check out our latest blog piece

PenCRU Annual Report 2015

We are pleased to announce publication of the PenCRU Annual report for 2015.

Healthy Parent Carers programme – now recruiting

Are you a parent carer or do you know a parent carer who would like to improve their health and wellbeing?

New CHUMs open access paper and plain language summary published

Which questionnaire is best to assess the health and quality of life of children with neurodisability?

ADHD research - CATCh-uS begins

Research into transition of young people with ADHD from child to adult services starts.

Autism & Dentistry Project (APEx-D) starts recruiting!

We are seeking parents of children with autism to hear about their dental experiences

Review of the Evidence for Sleep Positioning Systems Published

Are sleep positioning systems effective for children with cerebral palsy?

New publication about group-based health programmes

We are pleased to announce a new publication from Ola’s PhD thesis entitled ‘A checklist to improve reporting of group-based behaviour-change interventions’.

New Evidence Summary - Advanced Biomechanical Rehabilitation

What is ABR and is it effective for children with cerebral palsy and/or learning disability?

BITE us!

NIHR PenCLAHRC has featured findings from PenCRU’s research aiming to improve communication with disabled children when they have to stay in hospital in a new bite-sized summary.

Communicating with disabled children - 4 top tips

Exeter College students work with PenCRU to create a poster for hospitals