New CHUMs open access paper and plain language summary published

We are pleased to announce the latest paper from our study examining health outcomes for children with neurodisability in the journal Developmental Medicine & Child Neurology.

The paper presents findings of a systematic review of child and/or parent self-completed health questionnaires, known as patient reported outcome measures (PROMs). The study brought together evidence from published research about how well the available PROM questionnaires performed when tested in studies that included children with neurodisability conditions.

The most common neurodisability conditions in which evaluations were conducted were cerebral palsy, epilepsy, ADHD, autism, and traumatic brain injury. There is more evidence in samples of children with neurodisability that the questionnaire called DISABKIDS is a robust measure. Overall our review identified a lack of evidence of how well PROM questionnaires perform in children with neurodisability, especially to assess meaningful changes in health.

The plain language summary is here

The full paper is available FREE as open access here  

You can find out more about the broader research project CHUMS

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