Parents suggest which indicators of progress and outcomes should be measured in young children with Autism Spectrum Disorder (ASD)

We are pleased to promote a new publication from the MeASURe study on selecting outcomes for young children with autism. This paper describes research that sought to identify parents’ views on which outcomes they feel are most important to measure for young children with autism.

There is growing recognition of the importance of ensuring that the outcomes measured in research are outcomes that are valued by individuals affected by a condition and their carers. This paper reports a scoping review of published qualitative studies and consultations with parent advisory groups. The aim was to identify parent views about the outcomes that are important in measuring the progress of young children with autism.

Their highest ranked outcomes impacted directly on everyday life: namely anxiety, distress, hypersensitivity, sleep problems, happiness, relationships with brothers and sisters, and parental stress. There was considerable overlap between these outcomes and the proposed core suite of outcomes for children with neurodisability generally that we identified in our CHUMS project.

You can access and read the full paper for free.

This research was led by Professor Helen McConachie at the University of Newcastle with a team from around the UK and Australia.

The work was commissioned and funded by the National Institute for Health Research

Find out more on our MeASURe project page.

 

 

 

 

 

 

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