New academic publication

A new scientific paper from our research programme Changing Agendas on Sleep, Treatment and Learning in Childhood Epilepsy (CASTLE) has been published in the journal Epilepsia. The paper describes development of a core outcome set for childhood epilepsy is free to access.


The study findings propose 38 discrete outcomes in 10 domains as crucial to consider in childhood epilepsy research: seizures, sleep, cognition, mental health, social functioning, physical functioning, behaviour, family life, global quality of life, and adverse events.

 

The methodology followed guidance from the COMET Initiative. First we reviewed which outcomes had been measured in research for children with epilepsy, issues highlighted in qualitative research, and aspects of health in epilepsy-specific quality of life questionnaires. Then young people with epilepsy, parents, and various health professionals rated which ones they thought were most important to measure. Some participants met to ratify the final selection. This process enabled consensus to emerge on what to measure in research.

 

Read about Changing Agendas on Sleep, Treatment and Learning in Childhood Epilepsy and visit the CASTLE website.

The CASTLE programme is funded by NIHR Programme Grant.

Back to News