Plain Language Summaries

‌‌A plain language summary is a brief version of an academic paper or other document, that has been written to be accessible to everyone. It is written clearly, and includes explanations for any technical terms that are used.

PenCRU have produced plain language summaries of our publications. These have been written by members of our Family Faculty and members of our research team together. If you are interested in seeing the full publication for any of these summaries please get in touch.

Project	Plain Language Summaries
Autism: Parent Experiences of Dentistry (APEx-D)	Parent experiences of taking a child with autism for a dental check up
Changing Agendas on Sleep, Treatment and Learning in Childhood Epilepsy (CASTLE)	Protocol for the selection of a core outcome set
Changing Agendas on Sleep, Treatment and Learning in Childhood Epilepsy (CASTLE)	What is most important to measure in research for children with epilepsy?
Children & Young People Project	Involving Disabled Children & Young People in Research
Healthy Parent Carers Feasibility Study	Healthy Parent Carers Feasibility Study
Healthy Parent Carers	Healthy Parent Carers a peer led programme to improve health and wellbeing
Hospital Communications	How could communication on hospital wards be improved
Hospital Communications	In hospital and out of reach – the perceptions of disabled children
Hospital Communications	Improving disabled children’s experiences in hospital
JLA	Top 10 research topics on interventions‌ for children and young people with neurodisability
Peer Support	Parent to Parent Support - Costs & Benefits
Peer Support	Parent to Parent Support - does it help?
Peer Support	Parent to Parent Support - Findings from an Interview Study
Sleep Systems	Sleep Positioning Systems for Children with Cerebral Palsy
The Children’s oUtcome Measurement Study (CHUMS) Study	Prioritising health outcomes for children and young people with neurodisability
The Children’s oUtcome Measurement Study (CHUMS) Study	Families views on key outcomes for neurodisability plain language summary
The Children’s oUtcome Measurement Study (CHUMS) Study	What are professionals trying to achieve plain language summary
The Children’s oUtcome Measurement Study (CHUMS) Study	What are professionals trying to achieve plain language summary Developing a definition of neurodisability
The Children’s oUtcome Measurement Study (CHUMS) Study	Which questionnaire assessing children’s health & quality of life to use?
The Children’s oUtcome Measurement Study (CHUMS) Study	Which questionnaire is best for children with neurodisability?‌
Understanding Children's Attitudes towards Disability	Positive attitudes towards disability plain language summary
Understanding Children's Attitudes Towards Disability	Contact with disabled people linked with having more positive attitudes
Understanding Children's Atitudes Towards Disability	Can we improve how we measure children’s attitudes about disability?‌‌

PenCRU have also collaborated on a study led by researchers at Chailey Heritage Clinical Services, part of Sussex Community NHS Trust, to develop a new Eating and Drinking Ability Classification System (EDACS) for people with cerebral palsy. The study is published in a journal called Developmental Medicine and Child Neurology, and a plain language summary is available:

EDACS plain language summary