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Projects and meetings

Plain Language Summaries

‌‌A plain language summary is a brief version of an academic paper or other document, that has been written to be accessible to everyone. It is written clearly, and includes explanations for any technical terms that are used.

PenCRU have produced plain language summaries of our publications. These have been written by members of our Family Faculty and members of our research team together. If you are interested in seeing the full publication for any of these summaries please get in touch.

 

ProjectPlain Language Summaries 
Autism: Parent Experiences of Dentistry (APEx-D) Parent experiences of taking a child with autism for a dental check up PDF 775 KB
Children & Young People Project

Involving Disabled Children & Young People in Research ‌Summary of review paper‌‌ PDF 664 KB‌

Hospital Communications

In hospital and out of reach – the perceptions of disabled children Summary of review paper‌‌ PDF 417 KB‌

Hospital Communications How could communication on hospital wards be improved  Summary of review paper PDF 689 KB

Hospital Communications

Improving disabled children's experiences in hospital Summary of review paper PDF 609 KB

JLA

Top 10 research topics on interventions for children and young people with neurodisability Summary of review paper PDF 251 KB
Peer Support Parent to Parent Support - Costs & Benefits Summary of final report PDF 678 kB
Peer Support Parent to Parent Support - does it help? Summary of review paper PDF 501 KB
Peer Support Parent to Parent Support - Findings from an Interview Study Summary of qualitative research PDF 709 KB
Sleep Systems

Sleep Positioning Systems for Children with Cerebral Palsy Summary of Cochrane review 686kB

The Children’s oUtcome Measurement Study (CHUMS) Study

Prioritising health outcomes for children and young people with neurodisability PDF 510 KB

The Children’s oUtcome Measurement Study (CHUMS) Study Developing a definition of neurodisability plain language summary PDF 394 KB‌
The Children’s oUtcome Measurement Study (CHUMS) Study

Families views on key outcomes for neurodisability plain language summary PDF 592 KB‌

The Children’s oUtcome Measurement Study (CHUMS) Study What are professionals trying to achieve plain language summary PDF 712 KB
The Children’s oUtcome Measurement Study (CHUMS) Study Which questionnaire assessing children’s health & quality of life to use? PDF 530 KB
The Children’s oUtcome Measurement Study (CHUMS) Study Which questionnaire is best for children with neurodisability? PDF 516 KB
Understanding Children's Attitudes towards Disability Positive attitudes towards disability plain language summary Summary of review paper PDF 732 KB
Understanding Children's Attitudes Towards Disability Contact with disabled people linked with having more positive attitudes Summary of final report PDF 581 KB
Understanding Children's Atitudes Towards Disability Can we improve how we measure children’s attitudes about disability?‌ PDF 640 KB

PenCRU have also collaborated on a study led by researchers at Chailey Heritage Clinical Services, part of Sussex Community NHS Trust, to develop a new Eating and Drinking Ability Classification System (EDACS) for people with cerebral palsy. The study is published in a journal called Developmental Medicine and Child Neurology, and a plain language summary is available:

EDACS plain language summary PDF 732 KB