Benefits and costs of peer support for parents of disabled children

What are the benefits and costs of providing peer support to parents of children with disability?

The first phase of the project was a systematic review of the existing literature on providing peer support to parents and carers of children with a disability in a broader context, including one-to-one and group interventions for parents of children with any chronic health condition. The second phase was an evaluation of the two peer support services offered by Face2Face in Devon and Cornwall.

Face2Face is a national, charitable network that offers peer support to parents of disabled children from trained befrienders. The evaluation included a costing study and qualitative research. In the costing study we investigated what resources are needed to provide the service. In the qualitative research, we wanted to hear people’s views and experiences of peer support. We conducted interviews with parents who had given or received support through Face2Face and a group of relevant health and social care professionals who might refer to the service. We sought to understand more about whether people think peer support works and how, who benefits from support and what are the benefits? 

Outputs

Shilling, V., Bailey, S., Logan, S. and Morris, C. (2015), Peer support for parents of disabled children part 2: how organizational and process factors influenced shared experience in a one-to-one service, a qualitative study. Child: Care, Health and Development, 41(4): 537–546

Shilling, V., Bailey, S., Logan, S. and Morris, C. (2015), Peer support for parents of disabled children part 1: perceived outcomes of a one-to-one service, a qualitative study. Child: Care, Health and Development, 41(4): 524–536

Shilling V, Morris C, Thompson-Coon J, Ukoumunne O, Rogers M, Logan S. (2013) Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies. Developmental Medicine & Child Neurology, 55: 602–609.

Shilling, V., Morris, C., Hawton, A., Bailey, S., Logan, S. (2015). What are the benefits and costs of providing peer support to parents of disabled children? Final Report: PenCLAHRC, University of Exeter Medical School.

We have also produced plain language summaries for each paper.

This research was funded by the NIHR through PenCLAHRC.

For more information, please get in touch.

 

research cycle

The notes from meetings held in relation to this project are also available:

Meeting Notes

11th July 2013 Peer support stakeholder group meeting  word 122KB
12th July 2012 Peer support project stakeholder meeting PDF 138KB
8th March 2012 ‌ Peer support meeting notes PDF 102KB
20th July 2011 Peer support study stakeholder group meeting PDF 127KB
18th May 2011 Peer support systematic review meeting PDF 155KB