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Projects and meetings

Plain Language Summaries

‌‌A plain language summary is a brief version of an academic paper or other document, that has been written to be accessible to everyone. It is written clearly, and includes explanations for any technical terms that are used.

PenCRU have produced plain language summaries of our publications. These have been written by members of our Family Faculty and members of our research team together. If you are interested in seeing the full publication for any of these summaries please get in touch.

 

ProjectPlain Language Summaries 
Autism: Parent Experiences of Dentistry (APEx-D) Parent experiences of taking a child with autism for a dental check up
Changing Agendas on Sleep, Treatment and Learning in Childhood Epilepsy (CASTLE)

Protocol for the selection of a core outcome set 

Changing Agendas on Sleep, Treatment and Learning in Childhood Epilepsy (CASTLE)

What is most important to measure in research for children with epilepsy?

Children & Young People Project

Involving Disabled Children & Young People in Research ‌ 

Healthy Parent Carers Healthy Parent Carers a peer led programme to improve health and wellbeing   
Hospital Communications How could communication on hospital wards be improved 
Hospital Communications In hospital and out of reach- the perceptions of disabled children

Hospital Communications

Improving disabled children's experiences in hospital 

JLA

Top 10 research topics on interventions‌ for children and young people with neurodisability 
Peer Support Parent to Parent Support - Costs & Benefits 
Peer Support Parent to Parent Support - does it help?
Peer Support Parent to Parent Support - Findings from an Interview Study
Sleep Systems

Sleep Positioning Systems for Children with Cerebral Palsy  

The Children’s oUtcome Measurement Study (CHUMS) Study

Prioritising health outcomes for children and young people with neurodisability 

The Children’s oUtcome Measurement Study (CHUMS) Study

Families views on key outcomes for neurodisability plain language summary

The Children’s oUtcome Measurement Study (CHUMS) Study What are professionals trying to achieve plain language summary 
The Children’s oUtcome Measurement Study (CHUMS) Study What are professionals trying to achieve plain language summaryDeveloping a definition of neurodisability
The Children’s oUtcome Measurement Study (CHUMS) Study Which questionnaire assessing children’s health & quality of life to use? 
The Children’s oUtcome Measurement Study (CHUMS) Study Which questionnaire is best for children with neurodisability?
Understanding Children's Attitudes towards Disability Positive attitudes towards disability plain language summary 
Understanding Children's Attitudes Towards Disability Contact with disabled people linked with having more positive attitudes  
Understanding Children's Atitudes Towards Disability Can we improve how we measure children’s attitudes about disability?

PenCRU have also collaborated on a study led by researchers at Chailey Heritage Clinical Services, part of Sussex Community NHS Trust, to develop a new Eating and Drinking Ability Classification System (EDACS) for people with cerebral palsy. The study is published in a journal called Developmental Medicine and Child Neurology, and a plain language summary is available:

EDACS plain language summary