PROMOTE Study: Patient Reported Outcome Measures Online To Enhance communication and quality of life after childhood brain tumour
The PROMOTE Study aims to evaluate a way to enhance child-clinician-parent communication during outpatient consultations for children who have been treated for brain tumours. Survivors of brain tumours may sustain some degree of acquired brain injury and consequent neurodisability.
Participating children and their parents will complete standard questionnaires about their health and wellbeing online prior to outpatient appointments. The study will evaluate whether sharing this information influences communication between the doctor and the family, and improves treatment plans.
The first stage involves deciding which Patient Reported Outcome Measure questionnaires to use in the study through a systematic review and consultation with a family advisory group. The selected questionnaires will then be included in an online system developed in the Netherlands called KLIK.
Subsequently, the process will be evaluated in outpatient clinics at children’s cancer treatment centres at Great Ormond Street Hospital, Nottingham and Southampton. We will use interviews with families and staff to assess whether the process was feasible to implement it in routine clinical practice.
This research is funded by The Brain Tumour Charity
Chief investigator: Professor Colin Kennedy
Project manager: Dr Kim Bull