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New publication from our epilepsy research programme

See our latest publication evaluating epilepsy‐specific patient‐reported outcome measures of children's health‐related quality of life. Patient Reported Outcome Measures (PROMs) assess a patient's health at a single point in time, collected through short, self-completed questionnaires.

This research involved bringing together all the evidence from studies that have examined measurement properties of questionnaires that aim to measure health related quality of life for children with epilepsy. Examples of ‘measurement properties’ include validity and reliability.

We identified 27 papers that evaluated the measurement properties of 11 epilepsy‐specific PROMs. Based on published and peer reviewed evidence, currently there are two leading candidate methods for measuring health‐related quality of life in children with epilepsy. One tool has a questionnaire for children to self-report as well as a parent questionnaire, the other has only a parent questionnaire.

The full text is freely available (open access) in the journal Epilepsia

This research is part of the CASTLE Study funded by National Institute for Health Research Programme Grants for Applied Research (RP‐PG‐0615‐20007). We also acknowledge support from the NIHR Applied Research Collaboration South West Peninsula (PenARC). The views and opinions expressed in this paper are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.